What is PPB?
Pleuropulmonary blastoma (PPB) is a rare [glossary term:] tumor of the lung. It is typically diagnosed in infants and children younger than six years old. Research has shown that PPB, and other related tumors, may be part of an inherited cancer predisposition [glossary term:] syndrome resulting from changes in a gene known as DICER1. Not everyone with PPB has a change in DICER1 that can be detected from a blood and/or saliva sample.
How can I join?
All individuals with PPB or related tumors and conditions and their family members are encouraged to participate.
Phone: 1-800-518-8474 to speak with the referral nurse