Who is on the study team?

The PPB DICER1 Syndrome Study team is made up of researchers from these collaborating institutions:

National Cancer Institute (NCI)

Douglas Stewart, MD (Study Director/Principal Investigator) is an internist and medical geneticist at NCI's Clinical Genetics Branch. Dr. Stewart has a special interest in familial cancer syndromes.

Ann Carr, MS, CGC is a genetic counselor with many years of experience in both cancer and pediatric genetics.

Rosamma Decastro MSN, CRNP has two decades of experience working as a Family Nurse Practitioner at NIH and in private practice.

Laura Harney, RN, BSN is a registered nurse with 16 years of experience in clinical nursing and 7 years of experience in research support in cancer genetics studies.

Children’s National Medical Center

Leslie Doros, MD, (Lead Oncologist) is a pediatric oncologist who specializes in the treatment of rare tumors and directs the cancer genetics clinic at Children’s National Medical Center.

Ashley Hill, MD is Chief of Pathology at Children’s National Medical Center and led the study team that discovered changes in the DICER1 gene that can cause PPB and related tumors.

International Pleuropulmonary Blastoma Registry

Yoav Messinger, MD is a pediatric oncologist at Children’s Hospitals and Clinics of Minnesota with many years of experience treating children with PPB. See the International Pleuropulmonary Blastoma Registry’s website.

Kris Ann Schultz, MD is a pediatric oncologist at Children’s Hospitals and Clinics of Minnesota with a special interest in ovarian and testicular tumors. See the International Ovarian and Testicular Stromal Tumor (OTST) Registry's website.

Washington University in St. Louis

Louis “Pepper” Dehner, MD is a world-renowned pathologist and was the first to characterize PPB in 1988.

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How can I join?

All individuals with PPB or related tumors and conditions and their family members are encouraged to participate.

Phone: 1-800-518-8474 to speak with the referral nurse
Email: NCI.PPB@westat.com